Thursday, October 20, 2011

Day one

Over the next few days I will share with you a few of Lucy's Favorite things. Day one-picking up shells at the beach. She said it is relaxing, they are pretty and they are memories.

Tuesday, April 26, 2011

Children's Miracle Network Hospitals Champions

Champions is a Children's Miracle Network Hospitals program that brings attention to the important work being done at its 170 children’s hospitals. It does this by honoring 51 remarkable kids who have faced severe medical challenges, and helping them tell their stories.

The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the nearly 17 million children treated at Children’s Miracle Network Hospitals every year. The 2011 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.

The Champions travel for a week in October, first to Washington, D.C., where they traditionally meet with their state senators on Capitol Hill, and the President of the United States during a visit to the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. There, champions meet Children’s Miracle Network Hospitals sponsors, hospital representatives and media partners who all convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.

Thursday, April 21, 2011

Lucy's Story

Age 6

Children’s Hospital Foundation

Congenital Adrenal Hyperplasia

Shortly after birth, Lucy was diagnosed with Congenital Adrenal Hyperplasia. Lucy is unable to make the stress hormone cortisol, which means she becomes very ill in times of physical stress. Her first year was very traumatic, but with the help of the medical teams through Children’s Hospital Foundation, Lucy, now 6, is extremely active and living the life of a normal child.

Lucy will be on replacement doses of hormones the rest of her life due to her adrenal insufficiency, but that doesn’t slow her down. You’ll always find her running around, meeting new friends. She loves to laugh and you’ll frequently find her singing her way through her day.

When Lucy grows up she wants to be a doctor. She can already walk you through a typical doctor’s visit by taking your vitals, listening to your heart beat and giving you a pretend shot. She knows the all the procedures and will ensure you receive the best possible care, just like she’s received every step of her life.